Courts are twice as likely to hear claims from patients with rare diseases

Over the year, the number of court cases on the provision of benefits and state guarantees to patients with orphan (rare) diseases has doubled. In 2025, the courts of the first, appellate and cassation instances, as well as the Supreme Court of the Russian Federation, considered 288 such disputes against 127 in 2024, a member of the expert council on rare diseases of the State Duma Committee on Health Protection Natalia Smirnova said at a round table in the Public Chamber of the Russian Federation.